Siblings of the Disabled

 
  Siblings of the Disabled Kristen DiPaolo | CWK Network
 
 
“We laughed about how most people say their dogs ate their homework, and you can just say ‘My brother ate my homework!’”

Claire Dees, Mother


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Claire Dees has spent two years teaching her son Blake to put on his shoes. Blake has autism. That means Claire spends far more time with him, than with her other children.

Since she was five, Blake’s 21-year-old sister Jennifer has lived with the outbursts and the chaos of an autistic brother. She says, “I remember Blake being very loud at night. He didn’t sleep at night so neither did the whole family.”

Blake once ripped apart his brother’s science project. Claire says, “We laughed about how most people say their dogs ate their homework. And you can just say, ‘My brother ate my homework!’”

Experts used to worry kids like Jennifer would suffer from stress and a lack of attention. Dr. Peggy Gallagher, an associate professor in special education says, “Actually what we are finding now over the past 10 years, 15 years of research is that there’s really some real benefits to having a child with disabilities in the family. The kids report that they are more compassionate, more caring.”

Experts say disabled kids can teach their siblings how to love someone who is different.

“They sometimes look funny, and they act funny, and they are a little funny in public, and it’s embarrassing. A kid can who can deal with that, maybe being embarrassed, might have a much easier time later on in life,” says family counselor Cheryl Rhodes.

Jennifer says, “Having lots of crises all the time…I don’t know it just makes you a more even person, more easy-going.”

Blake would yell and shriek, bang against the wall, and yet Jennifer and her brother fought against sending him away. Claire says, “We’ve had very rough times where we’ve said ‘We don’t know if we can keep him here anymore. This is really hard to do.’ And one of them would speak up and say, ‘Oh, no! We’ll help. We wouldn’t want him to ever have to go somewhere’”.

By Larry Eldridge
CWK Network, Inc.

Brothers and sisters, in any family, have their ups and downs. Many factors affect how siblings relate to each other on a given day. Having a brother or sister with a disability or serious illness can create additional challenges that affect the sibling relationship. Some of these concerns, according to The Arc, formerly the Association for Retarded Citizens, are:

  • Embarrassment due to the sibling’s behavior or appearance.
  • Guilt about not having a disability.
  • Fear the child might develop the disability.
  • Anger or jealousy over the amount of attention the brother or sister with a disability or serious illness receives.
  • Isolation or feeling like no one else has the same feelings or experiences about having a sibling with special needs.
  • Feeling the need to excel in school, sports or other ways in order to “make up” for a sibling’s inabilities.
  • Stress due to increased care-giving demands that can fall on the shoulders of the non-affected sibling.
  • Need for information about the sibling’s disability or illness.
 
By Larry Eldridge
CWK Network, Inc.

Parents of a special-needs child naturally devote a lot of time and attention to their child. However, it is important to take the time to consider the unique concerns of their other children as well. The Sibling Support Project suggests these positive actions for parents:

  • Set aside special time to spend with your child.
  • Encourage good communication and expression of feelings about their disabled or ill sibling.
  • Provide opportunities to meet other siblings of children with special needs.
  • Provide information about the sibling’s disability or illness.
  • Discuss family matters with children. Reassure your child by planning for the future of the child with special needs.
  • Remember to treat your child as a child and not as an adult caretaker.

In addition to the hardships, there appear to be some benefits in being a sibling of a special-needs child. The Sibling Support Project says research suggests siblings may:

  • Gain insights on the human condition as a result of growing up with a brother or sister with special needs.
  • Develop a certain level of maturity as a result of successfully coping with a sibling’s special needs.
  • Take pride in their brother or sister, perhaps realizing how much harder their sibling has to work to make gains.
  • Develop a strong sense of family loyalty.
  • The Arc says children in families where a sibling has special needs have been found to be “more mature, responsible, self-confident, independent and patient.”
 

The Arc
Children’s Hospital and Regional Medical Center – Seattle, Wash.
Dr. Lawrence Kutner
Parent Books
Siblings of Autism and Related Disorders